Support Beyond Your Infusion Visit
Resources, guidance, and professional support for patients and caregivers.
Support Beyond Your Infusion Visit
You Are Not Alone
Living with a chronic or complex condition can be challenging. Patient support groups help people connect with others who understand their experiences.
Patient Support Resources & Materials:
Inspire
www.inspire.com
Inspire hosts condition-specific communities where patients and caregivers can connect, share experiences, ask questions, and offer encouragement in a moderated environment.
HealthUnlocked
healthunlocked.com
HealthUnlocked is a large health-focused social network offering peer support across a wide range of conditions, including immune and autoimmune disorders.
IDF Friends
idffriends.org
IDF Friends is a supportive online community created by the Immune Deficiency Foundation. It allows individuals with immune deficiencies to connect and share their experiences.
GBS CIDP Community Forum
forum.gbs-cidp.org
This forum provides a space for individuals affected by Guillain Barre Syndrome and CIDP to exchange information, experiences, and emotional support.
Myositis Support Network
www.myositis.org/patient-support/support-groups
The Myositis Support Network offers access to support groups and educational resources for patients living with myositis and related conditions.
PANDAS and PANS Family Resources
www.pandasppn.org/parent-information
This resource provides education and family-focused support for those affected by PANDAS and PANS, including guidance for caregivers and parents.